Icahn School of Medicine at Mount Sinai and Columbia University Medical Center are about to launch a new clinical trial for skin diseases in individuals with Down syndrome.

We want to hear from individuals with Down syndrome and their families and friends.

Where: Goldwurm Auditorium, 1425 Madison Ave. (corner of 98th st and Madison Av), 1st floor New York, NY 10029

When: October 7, 2024, 6:30-8:00pm

Who should come? Individuals with Down syndrome, their families, friends and allies.

What will happen at the event? Doctors from Columbia University Medical Center and Icahn School of Medicine at Mount Sinai will talk about the new NIH sponsored clinical trial which is to examine an FDA approved drug on atopic skin diseases in individuals with Down syndrome.

We want to hear from all of you, as we think it is important to incorporate your experience, thoughts and suggestions into our clinical trial design.

Speakers:

6:30 pm Welcome and Program Overview

Emma Guttman, MD, PhD

6:45 pm Inflammation in individuals with Down syndrome

Dusan Bogunovic, PhD

7:00 pm Skin comorbidities in DS

Benjamin Ungar, MD

7:15pm The potential of Jak 1 inhibition with abrocitinib in DS

Emma Guttman, MD, PhD

7:30pm Patient and Expert panel

8:00 pm Closing Remarks

Dusan, Bogunovic, PhD